Faces of the $100M Campaign to Accelerate: Christine’s Story

Christine MacGibbon has lived with type 1 diabetes (T1D) for 27 years. She raises awareness of the realities of living with this disease in meaningful and unique ways, leveraging her modelling, storytelling, and competitive dance background. She is a bold ambassador for Breakthrough T1D, courageously sharing her story through our Mental Health program and Let’s Talk T1D Education Series on T1D and disordered eating.

The $100M Campaign to Accelerate is Breakthrough T1D’s bold fundraising plan to streamline and speed up the most promising T1D research in Canada and worldwide. Led by passionate philanthropists and dedicated volunteers, this major gift campaign has raised over $86M, funding twice the T1D research than six years ago. Together, we are driving an unstoppable movement to change lives today and accelerate cures tomorrow for people living with T1D like Christine.

Trigger warning: This story references a disordered eating behaviour known as diabulimia (insulin omission to lose weight)

Christine was diagnosed at age nine and remembers having lost a lot of weight and needing to urinate more frequently. She says it got to the point where her teachers were giving her detention because they thought she was trying to get out of class; they didn’t know anyone who had diabetes or its signs and symptoms.

Christine was admitted to the hospital after receiving a T1D diagnosis, which didn’t seem so bad at first; she had a dedicated diabetes care team to help manage her T1D and who helped teach her and her family about the disease. She also met children her age diagnosed around the same time, including one of her best friends to this day. Being surrounded by others who understood what she was going through helped her navigate the first couple of weeks of her diagnosis. Yet once she returned home, she didn’t have the comprehensive diabetes care that she needed to thrive.

Christine had a hard time accepting her new reality of living with a chronic illness. “I didn’t really understand what was happening inside my body and why I needed insulin,” Christine says, “I felt that I was my disease, and it was the reason why I wasn’t able to do so many things.”

Approaching her teenage years, Christine encountered stigma from others regarding her weight, insulin needs, and diabetes technology. This led her to believe that her diabetes was her fault, making her feel undeserving of health or happiness, so she tried to distance herself from her disease entirely. She stopped using her insulin pump, avoided checking her blood glucose levels, and restricted her insulin intake. As a result, she lost weight and received praise for it despite her suffering.

“I struggled with diabulimia for many years,” Christine says, “and at the time, there wasn’t a lot of research surrounding it, so I wasn’t able to get the treatments and support that I needed.”

At age 17, Christine’s HbA1c (the average of her blood glucose levels over 2-3 months) was over 14%. This is much higher than the 7.5% or less recommended for teens with T1D. She was also left without an endocrinologist during the challenging transition period between pediatric and adult care. Throughout her late teens and twenties, Christine was frequently in and out of the hospital and ICU due to diabetes complications that arose from her struggle with diabulimia.

It wasn’t until Christine learned about pathophysiology (the study of how a disease affects a patient) at university that she understood what was happening in her body and realized the damage she was doing to herself by withholding insulin. Talking with others living with T1D and learning about their similar challenges also helped Christine feel less alone in her T1D journey.

Thanks to donor-funded advancements in technology, she is now well enough to pursue a degree in Disability Studies at Toronto Metropolitan University. Christine aims to combat diabetes stigma and spark conversations about how society views and treats diabetes. She advocates for equitable access to T1D support and coverage, ensuring others don’t have to face the same adversities she experienced. She also champions body positivity and mental health in all her work.

Christine is hopeful for the future of T1D research, seeing the advancements in technology, breakthroughs, and new learning in diabetes, which are making lives better now. “When I think of what’s on the horizon and just how much the tech has advanced and how it’s helped me so far, I could see myself living through everything and being OK,”Christine says.

Join our growing community of T1D philanthropists

Donors to the The $100M Campaign to Accelerate make a profound and immediate impact, helping people like Christine, who bravely face the burdens of this relentless disease every day.

To learn more about how you can meaningfully invest through this exciting campaign, please contact:

Kim Lacombe 
Vice President, Philanthropy
klacombe@breakthroughT1D.ca
438-814-1668

Valentine’s Day Treat Carb Counts

Do you prefer the sweetness of a Hershey’s kiss, or maybe you like the spice of a cinnamon heart? For most of us, we can grab a handful of Valentine’s Day candy without thinking about it. But for people living with type 1 diabetes (T1D) every snack, every meal, every piece of food eaten must first be calculated for carbs and sugar against the insulin they need to take – just to stay alive.

For newly diagnosed families, learning the calculations of carbs against insulin needs can be challenging at first, but with practice and consistency this should become easier over time. And even for people who have been living with T1D for decades, the sugar or carb counts of certain foods can vary, either by brand or a change to the product.

Always make sure to check the label carefully, and consider downloading an app, like Roche’s mySugr app, Diabetes M, Quin, which can be connected to a flash glucose sensor (Quin is free but only available on IOS) or apps from your device manufacturers. Visit the website of the manufacturer of your device to find out more.

Carbs and Cals lets you take a photo of your meal, and the app searches its library of over 19,000 foods to give you the nutritional information you need.

MyFitnessPal app includes a database of over 14 million foods so you can find out nutritional information about what you’re eating, including the amount of carbs. It has a handy barcode scanner for ready-made products, and you can also add your own foods.

There is a free version and a paid version which has more features. The app is compatible with iOS and Android.

We always want the holidays to be fun for you, or a loved one with T1D, knowing that treats can still safely be enjoyed. It just requires a little extra work and knowing the carb levels of  favourite candies.

Remember also to factor in the portion of candy or chocolate you or your child eats to get a more accurate carb count.

  • Great Value Cinnamon Hearts (25 pieces) contains 15g total carbs, 15g net carbs, 0g fat, 0g protein, and 60 calories.
  • Hershey Kiss (1 piece) contains 3g total carbs, 2.8g net carbs, 1.5g fat, 0.4g protein, and 27 calories.
  • Hershey’s Reese’s Peanut Butter Cup (1 package – each 1.5 OZ – 2 cups – 2 1/8″ diameter per cup) contains 23g total carbs, 21.7g net carbs, 12.8g fat, 4.3g protein, and 216 calories.
  • Jellybeans (10 piece) contains 28g total carbs, 28g net carbs, 0g fat, 0g protein, and 113 calories
  • Compliments Jujubes (8 candies) contains 33g total carbs, 33g net carbs, 0g fat, 0g protein, and 130 calories.

(values found at https://www.carbmanager.com/)

For a more detailed list of Valentine’s candies and their carb counts, thank you to our friends at Waltzing the Dragon for this Valentine Treat Carb Guide (https://waltzingthedragon.ca/diabetes/nutrition-excercise/valentines-day-candy-chocolate-carb-counting-tips/)

Why I ride – Matt Varey

This May, Matt Varey, a key volunteer with Breakthrough T1D since 2001, will embark on an ambitious two-month long, 7500 km, cycling journey across Canada. As Matt rides Coast-to-Coast for Cures in support of Breakthrough T1D, his goal is that his passion and drive will inspire Canadians to give generously to make each day better for those living with type 1 diabetes (T1D) while driving towards cures.

Matt has held a series of key volunteer roles within Breakthrough T1D. Matt currently serves on both the Breakthrough T1D International Board of Directors as Vice Chair and Breakthrough T1D Canada Board of Directors. 

Matt was most recently a senior executive at RBC prior to his retirement in June 2024. Matt joined RBC in 1987 and held a wide range of senior management and executive positions within RBC, including Head of RBC Investments Canadian Financial Planning business. Prior to this responsibility, he was Vice President and General Manager of RBC Suisse, RBC’s Global Private Banking operations in Geneva, Switzerland. 

Matt graduated from McMaster University and currently enjoys retirement in Oakville, Ontario, with his wife, Dr. Andrea Jack, or AJ, and their four adult children. 

Matt sat down with Breakthrough T1D to share more about his motivations behind taking on such an ambitious fundraiser, and why supporting the T1D community is so important to him.

Breakthrough T1D: Tell us a little bit more about yourself

Matt Varey: I’m 61-years-old, born and raised in Oakville, ON. I had simple, caring parents, both are passed now, an older sister who lives in Calgary, and my brother lives in France. I went to McMaster for kinesiology. I absolutely loved sports, I still do. I was a competitive paddler, played football, rugby, and I biked. My life revolved around sports. But I had another passion, finance and investments. And upon graduation, I came to a fork in the road, did I pursue kinesiology or my other passion. I was always told when you come to a fork in the road, you have to choose one path and follow it through. I got an opportunity to start working at Dominion Securities, so I took the finance fork. I was 23 years old, and I ended up spending 37 years with RBC. I was in leadership for almost my entire career, and it took me so many places – to Saskatoon, Kitchener Waterloo, Toronto, Singapore, Switzerland.

It was also around this time that I met the love of my life, my wife AJ, on a blind date in Muskoka, and we got married about a year and half later. At that point we were living in Toronto, and that started our journey with our family. We have four beautiful adult children. Our oldest works at RBC, our second oldest is a chemical engineer, working to clean water around the world, our third works at Dominion Securities at RBC in the brokerage area, and the youngest works in commercial real estate. AJ is a partner at a dental practice and teaches part-time. And we are both extremely proud grandparents of two grandchildren.

And as I mentioned, my parents are gone, but they were the ones who taught me to always give back. They were very simple and kind people, who were always giving back. I live every day trying to honour what they taught me.

I love the outdoors, lakes, forests, prairies, mountains, anywhere I can just be outside, I love it and feel alive. I love to continue with my middle-aged body in sports, love to be on the bike, love that I’m retired and can follow the markets, I love to read. I am working towards achieving my pilot’s license. So, when I am not on my bike, I like to be in the air.  But most of all, I love to be involved with purposeful journeys, and surround myself with kind, caring people dedicated to a purpose.

Breakthrough T1D: You’ve been involved with Breakthrough T1D (formerly JDRF) as a volunteer and board member for over 20 years, how did you first get connected with the organization?

Matt Varey: My relationship with Breakthrough T1D started in 2001,  my wife AJ and my four small children were transferred at RBC back from Geneva to Toronto. At that time, we were asked to build a new Canadian business within the bank, and it entailed me and other leaders going across Canada and speaking to employees very passionately and credibly about what they were going to help build. We went coast to coast to Victoria, Newfoundland, Yellowknife. We visited branches, held town halls, we’d do four a day and went onto the next city, to talk about the business.

Banking is a human business based on trust. I had to get out of my introverted shell talking to employees, and so I would ask them – who are you as a person? I want to get to know you as a human beyond just work. I had no idea what Breakthrough T1D (then JDRF) was at the time. And you’d hear from people about their kids, or their sports, and 1 or 2 people, I would ask them about their family, and they would get teary, or speak with a crack in their voice. So, naturally I would probe a bit and ask more, and they would tell me about their family member and their journey with T1D.

So, when I got back from this Canada-wide work trip, I learned about the Breakthrough T1D ‘battle of the banks’ Ride – and thought to myself wow, I have to do this. That spring, I trudged down to City Hall, and was part of the RBC Ride team, I saw so many RBCers enthusiastically giving back, it was so inspiring. I saw all these people raising money for T1D research, and I made this connection to the people who I met along that work trip affected by T1D, and I got the bug. My mother always said, ‘what’s given is yours forever’ and I knew I had a new purposeful journey with Breakthrough T1D.

It all flowed from there. I became the chair of RBC Ride Cabinet, and then the National Cabinet Chair. I saw the power of progress, I saw the dedication, and the passion of people. So I said, I can’t stop at the Ride. And then I met a fabulous mentor, one of the most people important people in my life, Peter Oliver.

Peter was one of founding fundraisers of what was then JDRF, because of his daughter Vanessa, who lives with T1D. He was such a giving person, and he taught me things I will never forget about giving back. He told me: Always think big, never take no for an answer. Do things that will stand out, never underestimate, two is one, one is none, it’s not what’s in front of you, it’s who is on either side of you.

Peter was the definition of a mentor, about what Breakthrough T1D stood for, and the people who worked there. And he knew that he had this young guy named Matt, who would follow anything he asked. I’ve been a Board Member, Vice Chair, Chair of Breakthrough T1D Canada, and I’ve never felt a culture of giving, togetherness and dedication like I did from the people at this organization. This led me to being a board member of Breakthrough T1D International (headquartered in the United States), and now I am currently the Vice-Chair of Breakthrough T1D International.

And this journey can be credited in so many ways to Peter, who was and is, and always will be my north star.

Breakthrough T1D: How did you devise the idea for Coast to Coast for Cures?

Matt Varey: As I retired, in summer 2024 I thought about something my mum always taught me, which was to ‘never stop moving and never let the old man in’. So with mentors like my mum telling me to ‘keep moving’, and Peter Oliver saying, ‘make sure it’s big, make sure it stands out, and make sure it challenges you’, I came up with the idea for the event.

Riding across Canada for 57 days and 7500 kms coast to coast for a cause, it’s doing something different, and honestly – it’s something that scares me, which is good. I also love Canada so much, so that’s part of my journey too. And I knew RBC would always have my back, as a mission, values-based organization, they told me in my retirement if I ever did anything for Breakthrough T1D, they would be involved and support me 100%.

I want to challenge myself, hold true to my mum and Peter. And my wife said she would take two months off work, bring the dog and drive behind me. My wife is my everything and I could never do this without her.

And one evening I made a public proclamation that I was going to do this, and then there was no turning back.

Breakthrough T1D: What are you most excited about for the ride, both personally and for raising awareness of Breakthrough T1D and type 1 diabetes?

Matt Varey: The world is changed by your actions, not by your words. Human beings, deep inside, want to see people accomplish something that is hard, but shows dedication. I think that it attracts human beings to be generous. The sheer wonderment of ‘wow, he did that’. If we’re going to be asking people to help us raise half a million dollars, they want to see your skin in the game.

I’m excited about seeing the generosity of people. I’m an optimist, I always believe tomorrow is going to be better than today. So, I’m excited about people being generous. I’m excited to see Canada for two months with my wife and seeing my former RBC colleagues who I miss dearly.

Breakthrough T1D: Do you have a message for the Breakthrough T1D community?

Matt Varey: We will never ever stop moving forward for cures. Ever. And I am just one of thousands and thousands of incredibly dedicated volunteers who also wake up every day and say the same thing, with even more credibility than myself.

As Mary Tyler Moore, who lived with T1D herself would say, “you can’t be brave, if you’ve only had easy things happen to you.”

And people who live with T1D are brave every day. So please know that my commitment to you is to be brave also. And we will never ever stop until we get to a world free from type 1 diabetes.

To follow Matt’s progress on his journey or to support him, please visit: https://breakthrought1d.akaraisin.com/ui/CoastToCoastForCures