This June, Canadians from coast to coast will be coming together to unite, raise funds and help accelerate the pace of type 1 diabetes (T1D) research as part of the 2021 Sun Life Walk to Cure Diabetes for JDRF. This year is a big one…we’re commemorating 100 years since the discovery of the life-changing drug known as insulin – discovered right here in Canada. Because of that, we’re challenging our participants to ‘think 100.’ Whether it’s 100KM of walking, running, bottle returns, sit ups…the possibilities are endless!
We wanted to feature some of our favourite 100 challenges that we’ve seen thus far. Read on to see what our amazing participants are doing to ‘think 100!’
Dynamic-duo, Lindsay and her partner Cole – who has been walking for 21 years – , are full swing ahead with their challenge. This year, they thought they’d channel their competitive spirit and take it up a notch with their 100 challenge by running 100km by June 13th!
“It’s been a fun challenge, and everyone has been so supportive of my progress. Cole is training for a Half Ironman this summer, so he’s been a great motivator and running partner!”
Team Gunderson will be breaking a sweat until event day, celebrating their huge ‘100’ accomplishment on event day.
“Team Gunderson will be at the Walk – rain or shine, every step of the way!”
100 Vaccines for 100 years – Danny and family
This will be Danny and his family’s 19th year Walking with JDRF. This is also the 20th year since his eldest daughter, Aviva, was diagnosed with T1D.
“My goal, to go along with the 100th anniversary theme, will be to administer 100 COVID vaccine doses at a mobile vaccination site each month, until we don’t have to do this anymore. I will do this in addition to caring for my patients in my family medicine office since vaccinating is a another way that I can help to protect their health and the well being of the community.”
Like all parents, there is nothing Danny and his wife Debbie won’t do to help find a cure for T1D.
“We are honouring the 100th anniversary of the discovery of insulin.”
In an effort to give back to the community, Tilly’s 100 challenge involves writing 100 letters to residents of long-term care homes.
“The idea came about from a family brainstorming discussion. Tilly’s brother suggested writing letters and she thought it was a great idea!”says Jo – Tilly’s mom.
Tilly hopes to bring smiles to the faces of those in long term care with her words, adding that especially during COVID, people are missing their loved ones, and don’t have the ability to have face-to-face conversations much anymore.
“It’s a way of giving back to the community, as they’ve always been so supportive to her lived experience with T1D, and her fundraising.”
A dollar for diabetes research (Dayden and Sylvia)
Dayden was diagnosed with T1D when he was in second grade. It was a life-changing event for him and his family, but their school community were quick to jump in and support the Aspins.
“My first conversation with another type 1 diabetic happened to be my son’s teacher. The school had been so supportive of him and his needs, so we’re challenging the students to each bring in a dollar for T1D research.”
Mom, Sylvia, says the school has been overwhelmingly supportive of his challenge.
Not only are we raising dollars as part of the challenge, but we’re removing stigma, raising awareness and promoting the importance of what JDRF does.”
We love to hear these stories from our dedicated T1D families, and are so grateful for the overwhelming participation in the 2021 Walk, and our 100 challenge!
Have you signed up for the Walk yet? Join Canadians from coast to coast and start your 100 challenge today. We hope to see you on June 13th!
JDRF Canada is thrilled that federal budget 2021 includes new funding for type 1 diabetes research, as well as support for a national diabetes framework and improvements to the Disability Tax Credit (DTC).
Of the $35 million investment to honour the centenary of the discovery of insulin, JDRF is awaiting further details to better understand how this investment will support the renewal of the JDRF-CIHR Partnership to Defeat Diabetes, as JDRF had recommended a renewed research investment of $15M to be matched by JDRF and its donors for a total research impact of $30M.
In fall 2020, our youth ambassadors took to the Hill virtually as part of our Kids for a Cure lobby day. Our delegates met with Members of Parliament and Senators to raise awareness about the daily challenges faced by those living with T1D and the need for more Canadian research in this field – specifically through the Partnership.
The JDRF-CIHR Partnership to Defeat Diabetes is a landmark collaboration between the Government of Canada, through the Canadian Institutes of Health Research (CIHR), and JDRF Canada to support transformative type 1 diabetes (T1D) research. This unique partnership ensures that T1D remains a priority in Canadian health research and is based on a shared vision of improved care, treatment, outcomes and cures for those living with T1D.
Continued investment in diabetes research and care will ensure those living with the disease can live healthier, safer and easier lives. It will also ensure that Canada continues as a world leader in T1D clinical trials and translational research.
Federal budget 2021 acknowledges the importance of investing in diabetes care by including funding to establish a national framework for diabetes. The federal government appears poised to take on the work proposed by Liberal MP Sonia Sidhu in her Private Member’s Bill C-237, National Framework For Diabetes Act, which recently passed second reading in the House of Commons. Inspired by Diabetes 360 initiative first proposed by Diabetes Canada with support and input from JDRF Canada and other diabetes organizations, Diabetes 360 aims to develop meaningful targets designed to stem the rising tide of diabetes based on an innovative model that was used globally to tackle HIV/AIDS.
The need for a comprehensive diabetes strategy is becoming increasingly important given the rising costs of complications associated with diabetes and the rapid rise in incidence over the past decade.
The federal budget has also made changes to the eligibility criteria for the DTC, making key activities such as exercise, carbohydrate counting, medical appointments and time spent recovering from high or low blood sugars eligible to be counted against the 14 hours per week requirement. These changes are positive and should make it easier for more people with T1D to qualify.
As we mark the centenary of the discovery of insulin this year, it’s fitting to continue investing in crucial partnerships and strategies that will ensure those living with diabetes can stay healthy until a cure is found. We are grateful for this commitment by the Government of Canada.
Team of experienced biologists working on microscopes in laboratory
Update: May 3, 2021:
Ontario: As of May 10, 2021 anyone over 16 with type 1 diabetes can book a vaccine throughout the province.
Alberta: Children aged 12 -15 with type 1 diabetes are no longer required to present a doctor’s note when booking a vaccine. Anyone over 16 with type 1 diabetes is also eligible for a vaccine.
Update: April 27, 2021:
We have received many questions about vaccination for children and adolescents with T1D. Below is the latest recommendation from the National Advisory Council on Immunization (NACI):
9. NACI recommends that COVID-19 vaccines should not be offered routinely to individuals who are not in the authorized age group. (Strong NACI Recommendation)
a. However, a complete vaccine series with a Pfizer-BioNTech may be offered to individuals 12-15 years of age who are at very high risk of severe outcomes of COVID-19 (e.g., due to a pre-existing medical condition known to be associated with increased risk of hospitalization or mortality) or are at increased risk of exposure (e.g., due to living in a congregate care facility), if a risk assessment deems that the benefits outweigh the potential risks for the individual, and if informed consent with the individual and the parent or guardian includes discussion about the insufficiency of evidence on the use of COVID-19 vaccines in this population. (Discretionary NACI Recommendation)
Alberta is currently offering vaccines to individuals in the age group with T1D. We will keep monitoring the rest of Canada and provide updates accordingly once the provincial recommendations on children and adolescents are revised.
Original post:
April 26, 2021
Most of the country is now finding itself in the grips of the pandemic’s third wave, with many provinces back in lockdown. It has been a very long year, filled with fear and uncertainty – but hope is on the horizon. Vaccines have arrived and the rollout, while not without frustration, has been speeding up.
While this is undoubtedly good news, we cannot let up now. Until enough people are fully vaccinated and the rate of new COVID-19 cases declines, we must continue to take every precaution to prevent exposure to both ourselves and those around us. We will not be safe until we are all safe.
We have learned that having T1D doesn’t increase risk of contracting the virus that causes COVID-19, but that adults with T1D are at increased risk of serious outcomes if they do develop the disease. Age and having other health concerns such as high blood pressure, underlying heart or lung conditions, obesity – and potentially also high HbA1c – seem to further increase risk of serious outcomes.
Below are updated recommendations from CoronavirusDiabetes.org on how to best protect yourself and others from contracting COVID-19. Because it is possible to spread COVID-19 even when a person is asymptomatic or pre-symptomatic, it is important to follow these guidelines at all times to protect ourselves and those around us.
If you have COVID-19 symptoms or believe you have been exposed to COVID-19, please contact your healthcare professional and get immediately tested.
T1D and COVID-19
Early detection of COVID-19 or other health issues can be lifesaving – if you get sick, get treated quickly.
Measure temperature daily with a thermometer and check your heart rate with a watch. Track any changes.
Never stop taking insulin or other medications, even when you become sick. Discuss insulin or other medication dosage changes with a doctor.
Make sure you have a diabetes-specific sick day management plan ready, just in case.
Know the warning signs of diabetic ketoacidosis (DKA) and seek immediate medical attention for symptoms including fruity smelling breath, vomiting, weight loss, dehydration, confusion, and hyperventilation.
Higher than average blood sugar levels in individuals with diabetes are a risk factor for more severe COVID-19 outcomes. Here are some tips to help you maintain more consistent blood glucose readings:
Test blood sugar levels more often if you are under more stress than normal.
Contact your doctor or health professionals, ideally over a virtual visit, if your blood glucose numbers are consistently out of range.
Familiarize yourself with how to check for ketones. If you have adequate supplies, check for ketones regularly regardless of blood sugar levels.
Make sure you have enough supplies (test strips, glucagon, pens etc.) on hand.
Being overweight/obese and smoking are also major risk factors for more severe COVID-19 outcomes – try and maintain a balanced diet along with daily activity.
If you smoke or vape, it’s time to quit.
Try and get good sleep. At least 7 hours if you’re an adult. And a minimum of 9 hours for children.
Reach out for help if you are overwhelmed and finding it difficult to manage your T1D along with the added stress of protecting yourself from COVID-19. Speak to your healthcare provider or support network about accessing additional resources and help.
For you and your loved ones:
Basic precautions save lives
Wash your hands every time you come home, or after handling/opening a delivery/package etc. Always maintain social distancing from non-household members, including while outdoors. Wear a cloth mask or face covering any time you’re within 2 meters/6 feet of individuals outside your home, especially in settings where social distancing is not possible. The mask should be ideally 3 layers and include a filter and be very well fitted to your face. Check to ensure that air isn’t escaping from the sides or top of the mask.
Avoid prolonged exposure to aerosolized particles – e.g. indoor spaces with low ventilation, especially featuring loud conversation or singing. Avoid spending time indoors anywhere that is not your household without a well-fitted face covering.
Cough or sneeze into your elbow or a tissue and avoid touching your face.
Minimize trips outside of your home and try to avoid busy times or crowds when you do.
While these are the same precautions we have been advised to take throughout the pandemic, it’s not yet the time to relax these restrictions. By adhering to these guidelines, you can better protect yourself and your loved ones.
Closeup portrait, young scientist in blue gown looking into microscope. Isolated lab background. Research and development.
May 4th, 2021
On April 15, 2021 the U.S. Food and Drug Administration (FDA) granted breakthrough therapy designation for vTv Therapeutics’ TTP399 as an adjunct therapy to insulin for type 1 diabetes (T1D). This designation is intended to expedite the development and review of drugs for serious and life-threatening conditions.
TTP399 is a liver-selective glucokinase (or GK) activator. GK regulates blood sugar levels in the body. When blood-sugar levels rise, activation of GK in the liver stimulates glucose utilization, lowering glucose levels in the blood.
In a JDRF-funded phase II clinical trial called Simplici-T1, TTP399 significantly improved HbA1c in people with T1D. Additionally, trial participants who received TTP399 had reduced insulin doses and lower incidences of hypoglycemia (low blood sugar), and no increase in diabetic ketoacidosis (DKA).
After several human studies in type 2 diabetes, JDRF began funding vTv Therapeutics in 2017 to test TTP399 in people with T1D. These positive topline results from the phase II clinical trial follow similarly positive results obtained in a previous smaller clinical study reported by JDRF in June, 2019.
The next step will be upcoming pivotal trials and a study to test the effects of TTP399 on diabetic ketoacidosis (DKA).
This is an exciting development in research focused on improving lives for people living with T1D today. JDRF Canada will keep on top of the latest research results for potential impact to Canadians with T1D.
JDRF was founded over 40 years by a group of devoted parents to provide a voice for the type 1 diabetes (T1D) community – and with the ultimate goal of finding a cure for T1D so that their children and all those who came after could know a world free from the disease.
So, the National Volunteer Week theme for 2021, The Value of One, The Power of Many feels very fitting, as it reflects on the awe-inspiring acts of kindness by millions of individuals AND the magic that happens when we work together towards a common purpose.
This past year was one like no other, as the COVID-19 pandemic changed our lives completely. But one thing shone that through the darkness was the continued caring and compassion that we received from our volunteers.
As our fundraising events moved virtual, and we all learned new ways of staying connected from the safety of our homes, a constant was the support of our dedicated group of volunteers.
The power of people working together can bring about amazing changes and progress. And this has certainly been true at JDRF. All the major developments in T1D research have been funded or supported in some way by JDRF. And none of this would have been possible without the support of our volunteers.
We created our Let’s Talk T1D education and connection series, which provided our community with relevant information on topics such as devices and the opportunity to share personal experiences with each other.
Sernova announced that patients in their ongoing clinical trial, funded in part by JDRF show persistent islet function and clinically meaningful improvement in glucose control.
With volunteers by our side, we continued our advocacy efforts federally to push for a renewal of research funding and provincially to demand #AccessforAll – affordable and accessible diabetes technologies for all Canadians living with T1D.
Ustekinumab, a potentially disease modifying drug for type 1 diabetes, is now being tested in clinical trials in Canada.
And most recently we’ve been advocating across the provinces to ensure fair access to COVID-19 vaccines for people living with T1D.
The National Volunteer Week theme is a nod to the past, a reflection of the present, and a wink to the future. The Value of One, the Power of Many was also the theme for National Volunteer Week in 2001, The International Year of Volunteers.
It was chosen again as it beautifully captures both the individual and collective efforts that have been demonstrated over and over again during the pandemic, as well as setting the tone for the next 20 years as the value of one act and the power of many helps us thrive collectively.
And it feels appropriate too for JDRF, as we commemorate the 100th anniversary of the discovery of the insulin hormone and look ahead to aggressively pursuing research that bring us closer to a cure. We know that this will only be achieved with the continued strength of our volunteers.
While we acknowledge our volunteers during this week, we our thankful and grateful for al they do each and every day.
We have over 500 volunteers across Canada, who have been with us for over 5 years.
While some choose to remain anonymous, we recognize them here:
Volunteers can often be unsung heroes of an organization, but they help drive a mission forward with unparalleled dedication and perseverance, especially the volunteers at JDRF. And we couldn’t be more excited and honoured to recognize some of our incredible volunteers who always go above and beyond for the type 1 diabetes community.
The Ontario Volunteer Service Awards provide Not-for-Profit organizations the opportunity to recognize long-standing volunteers for their achievements. JDRF was thrilled to celebrate some of our key volunteers in Ontario, who were nominated by our staff. This dedicated and committed group were honoured in March 2021 via a virtual reception. A big congratulations and thank you to our amazing Ontario volunteers who have committed many years of service!
The 2020 Ontario Volunteer Service Award Winners are:
Youth Category – two or more years of continuous volunteer service
Lauren Penston (Waterloo, three years): Lauren has been a JDRF Youth Ambassador since the age of 9. Since taking on this role, Lauren has proven to be a wonderful, young leader in her community. She welcomes opportunities to speak about her type 1 diabetes (T1D) journey at the JDRF Walk, Fundraise Your Way events, and helps whenever she can as a volunteer – ready to recruit and thank our participants! Lauren also developed her own school presentation, to help her peers at school understand what life is like for a kid living with T1D.
Anne Pettigrew (Toronto, two years): Anne is a youth ambassador who has continually supported JDRF in any way that she can, through community engagement, advocacy and promotion of JDRF. Anne has also been a Kids for a Cure delegate, and was our Co-Chair for Kids for a Cure in 2020. Anne brings her passion for story telling and coaching to each and every meeting, creating a lasting impression on those she meets.
Adult Category – five to 65 years of continuous volunteer service, awarded at five year intervals
Jim and Jane Schuett (Waterloo, five years): Jim and Jane have been attending the Walk as participants and volunteers of the Walk Committee for over 18 years. One of Waterloo Region’s most dedicated JDRF families, the Schuett’s have contributed their time and expertise at nearly every JDRF Waterloo event held over the last several years, always stepping up to help new Fundraise Your Way events, and even volunteering for JDRF events away from home.
Janice Wirch (Windsor, five years): Janice is involved in the Walk committee, mentor team, and our Community Engagement events. She also helped found the “Back to School” event in Windsor. She is a leader in the community and is always willing to help at JDRF events, especially when she can connect with the local T1D community.
Mary Licatta (Windsor, 20 years): Mary has been involved with the JDRF Walk since 1997, when her son was diagnosed with T1D. . She has chaired the Walk, been on the committee, and has been a top-ten team ever since. Mary works closely with the Windsor community to ensure all community members living with T1D feel supported.
Deboarah Dick (Ottawa, 10 years): Deborah has been a longtime committee and event volunteer supporting many years of events in Ottawa. She brings her passion and dedication to each event she supports, bringing out the best of her fellow volunteers. We are lucky to have Deborah volunteer for so many years – and thrilled that she has received this great award!
JDRF is so proud of our passionate volunteers who generously donate their time, voice and skills to the type 1 diabetes community. Their contributions are invaluable in helping us move our mission forward every day. We wouldn’t be able to fund ground-breaking research and improve the lives of those living with T1D without their help.
100 years after the discovery of insulin, JDRF is pleased to announce the results of the first annual Beyond Insulin™ Vote for Research.
Thirty-seven founding members committed to recurring annual donations, supporting life changing type 1 diabetes (T1D) research, and providing stable funding to the most promising pathways to a cure.
Following a brief introduction to three encouraging research projects, members attended a Virtual Research Presentation led by JDRF Canada’s Chief Scientific Officer, Dr. Sarah Linklater to learn more. These same members were then offered a first-time opportunity to vote; either personally or by proxy, to direct the collective funds of the Beyond Insulin members.
“Our granddaughter was diagnosed at 2 years of age with [T1D]. As devastating as it is to receive the news of her diabetes diagnosis, I feel you just have to roll up your sleeves and manage it with the guidance, training, research and assistance of her medical care providers. It is not often that a family is able to have influence on the direction of research. Beyond Insulin motivated our contribution and participation.” -Anonymous Beyond Insulin Member
“I was pleased to be able to judge the projects and vote on which was preferred. Of course, it was a difficult choice since all three have value to the community with T1D.” said Monica Seger, a Beyond Insulin Member.
Next year, Beyond Insulin members will again be given the option to accelerate the funding of a pre-approved research project. As membership grows, so too will the funding opportunities, helping us to move beyond insulin.
What would a cure mean?
“It would mean relief, joy, and freedom for the entire family. Of greater importance would be the impact it would have on my granddaughter’s future quality of life as a young adult and beyond. NORMALITY! It would mean relief of stress on her parents, that will be life long without the cure. My wife and I would encourage anyone and everyone to join Beyond Insulin.”
La mission de FRDJ, qui consiste à améliorer la vie des personnes atteintes du diabète de type 1 et à guérir la maladie ne se fait pas en solitaire. Cela nécessite un engagement avec des intervenants qui croient en ce que nous avons l’intention de faire et qui peuvent nous aider à faire avancer notre mission – et ce groupe comprend les organismes de réglementation. À FRDJ nous sommes conscients de l’importance de son engagement auprès des organismes de réglementation afin d’ouvrir et offrir des voies claires et raisonnables pour les activités de recherche scientifique, l’approbation de traitements médicaux et la guérison des maladies du diabète de type 1.
C’est pourquoi que, le 24 février 2021, on a eu le plaisir à FRDJ de réunir des organismes de réglementation, des chercheurs, des représentants de l’industrie, des organismes de lutte contre le diabète et des patients canadiens pour promouvoir le dialogue, pour échanger des connaissances et d’entendre parler directement des traitements nouveaux et émergents pour le DT1, cela lors de notre deuxième symposium sur la recherche, organisé en partenariat avec Santé Canada.
Notre premier symposium de recherche a eu lieu en 2018, et comme nous commémorons cette année le 100e anniversaire de la découverte de l’insuline, cela était normal d’en organiser un autre. Cette année, l’événement est passé à un format virtuel, mais avec le même résultat, attirant des présentateurs et des participants de tout le pays.
Deux thèmes majeurs du Dr Norman Rosenblum, directeur de l’Institut de recherche en santé du Canada (IRSC), et du Dr Rémi Rabasa-Lhoret de l’Université de Montréal, ils ont ouvert la voie aux séances interactives suivantes.
Le docteur Rosenblum a fait un tour d’horizon concernant le fardeau du plus lourd du diabète au Canada et de la façon dont notre organisme fédéral de financement de la santé fait la lutte contre le diabète en 2021, grâce à un certain nombre de possibilités de financement stratégique, — incluant ceux en partenariat avec FRDJ.
Le docteur Rémi Rabasa-Lhoret a prononcé un discours passionnant sur la COVID-19 et le DT1, mettant l’accent sur les personnes atteintes du DT1 lesquelles courent un risque plus élevé de complications graves liées à la COVID-19.
Après les discours d’ouverture, trois séances interactives simultanées ont eu lieu, chacune portant sur un thème distinct important pour la communauté des personnes atteintes de DT1, et chacune mettant en vedette un conférencier de Santé Canada.
La première, intitulée Aller au-delà de l’insulinothérapie d’aujourd’hui Moving Beyond Insulin Therapy of Today, mettait l’accent sur les traitements d’appoint à l’insuline, les traitements en boucle fermée, les progrès réalisés dans le remplacement des cellules bêta et le traitement de l’hypoglycémie grave, en mettant en évidence le glucagon nasal.
La deuxième séance était dédiée à l’innovation des dispositifs en matière de gestion du DT1, laquelle traitait l’interopérabilité des dispositifs, l’administration automatisée de l’insuline, la cybersécurité des dispositifs médicaux et le point de vue de la communauté des personnes atteintes de DT1.
La troisième session, consacrée à l’immunothérapie et aux marqueurs biologiques, a principalement porté sur la prévention du DT1, les progrès dans le développement de l’amélioration des biomarqueurs, la thérapie spécifique aux antigènes pour les DT1 et la réglementation des produits d’insuline.
Durant les trois sessions on a abordé les thèmes qui englobent l’importance du choix du patient, de l’accès aux dispositifs et aux médicaments susceptibles d’alléger le fardeau de la gestion de la maladie et de réduire les complications, ainsi que de la nécessité d’accélérer la recherche du laboratoire aux essais cliniques. Les séances ont été suivies de tables rondes et de questions-réponses avec le public, ce qui avait pour but l’identification des obstacles et de permettre la promotion de nouvelles solutions identifiées pour le DT1 vers la clinique.
Les exposés de cet événement ont été l’occasion de mettre en évidence des recherches canadiennes diverses et passionnantes sur les thérapies émergentes pour le DT1 qui seront importantes pour toutes les personnes qui sont touchées par cette maladie – que ce soit vous, un parent, un membre de la famille, un médecin ou un chercheur.
À FRDJ on est reconnaissant envers Santé Canada pour son leadership dans les nombreux domaines de la science et de la réglementation qui ont fait l’objet des discussions, pour sa collaboration pour avoir rendu possible cet événement et pour sa détermination dans l’amélioration de la vie des Canadiens atteints de diabète.
Merci encore à tous ceux pour le partage de leur temps et leur expertise et qui ont participé à la conférence. L’ampleur et le rythme de la recherche sur le DT1 au Canada sont impressionnants.
Il aurait été impossible de tenir cet événement sans le généreux soutien de nos partenaires du secteur de l’apprentissage, Medtronic, Abbott, Dexcom et Eli Lilly.
Merci également à Santé Canada pour son partenariat et au personnel de FRDJ qui a travaillé sans relâche pour avoir organisé cet événement.
Halloween day will never be the same for Conrad Pow as that was the day in 2018 when his daughter Chloe was diagnosed with type 1 diabetes (T1D).
Determined to find the best possible tools to take care of his daughter’s diabetes, Pow says everything changed when Chloe started using the Dexcom G6 Continuous Glucose Monitoring System. By wearing a sensor and carrying a phone with her, she would get relief from all the finger pokes* and could be alerted if her glucose levels crossed certain thresholds and needed attention. For Pow, the Dexcom Follow app† was a real game-changer, allowing him to see Chloe’s glucose levels at any time of day or night – even when he wasn’t with her.
“Being able to see Chloe’s levels remotely allowed us to give Chloe more freedom, and gave our family more peace of mind. It’s been amazing.”
Pow said it was a priority for him to ensure Chloe could participate in everything her big sister Kaitlyn did, and allow her to have a fun childhood.
“When the girls go off together on a bike ride or head to a friend’s house for a sleepover, I can still keep an eye on Chloe’s levels from home. I want to protect her, but I also just want her to be a kid.”
For the Pow family, having adventures and making memories has always been the core of their approach to life. “The Dexcom G6 has given us more confidence to live life to the fullest, while still doing what needs to be done to manage Chloe’s diabetes. I simply couldn’t be more proud to have such a strong and happy six-year-old.”
For more information about the Dexcom G6, go to www.dexcom.com or ask your healthcare provider for a free sample.
*If your glucose alerts and readings from the Dexcom G6 do not match symptoms or expectations, use a blood glucose meter to make diabetes treatment decisions.
†Following requires the Dexcom Follow app and an Internet connection. Followers should always confirm readings on the Dexcom G6 app before making treatment decisions.
This past month, as part of JDRF’s #AccessforAllcampaign, British Columbians impacted by type 1 diabetes (T1D) came together with patient advocates, clinicians and elected officials to discuss the benefits of continuous glucose monitoring (CGM) and flash glucose monitoring (Flash GM) devices, and the need to cover these technologies under B.C. Pharmacare.
Nearly a dozen Members of Legislative Assembly (MLAs) participated in the four-part series alongside other participants, which made for a lively and engaging discussion.
Dozens of people of all ages and backgrounds shared their personal experiences using CGM and Flash GM devices, and the power these technologies have to be not only lifesaving, but lifechanging.
“We have the technology that allows self-driving cars, yet we are so behind in devices that can save lives.”
Their testimonials were emotional and impactful, and reaffirmed one more time the crucial need for provincial coverage of these devices:
Sophie Orth:
“I was diagnosed when I was 3 years old. Throughout my life, I had the luxury of having CGM and Flash GM devices to help me manage my diabetes. But due to unforeseen circumstances, my family struggled to afford CGM and Flash GM technology which forced me to reverse back to using the finger pricking method. Now, I have to see my doctor every week which is extremely difficult for me being in my graduation year. We don’t know what to do.”
Alyssa Florence:
“One night, my mom couldn’t wake me up. I was pale, freezing, had a massive headache, lost my vision, and could not move. My mom brought me to the hospital and the doctor told her that every organ in my body was getting attacked by the acid in my blood. If my mom had not brought me to the ER, I don’t think I would be here to tell you this story. All it takes is a CGM device to avoid all this. We have the technology that allows self-driving cars, yet we are so behind in devices that can save lives.”
Lisa Macdonell:
“CGM costs me $300 a month which adds up to $8000 a year to manage my diabetes. I am retired and struggling to afford CGM. My body doesn’t tell me when I’m low, so without CGM, I’m unable to participate in normal activities such as hiking or driving. I pay for CGM out of pocket because it’s a necessary device to keep me alive. The CGM alerts allow me to sleep through the night and feel safe.”
Miguel Alvarez:
“Living with T1D, no two days are the same and it’s a relentless condition that you have to monitor day and night, for the rest of your life. Reflecting on my past 51 years with this disease, CGM has been the most significant improvement to my treatment. CGM is not only a game-changer to help me manage my disease, but it helps practitioners make better-informed decisions with accurate data. I am lucky enough to get good coverage from my employer to cut costs, but how can it be that only those who can afford it live a better life? The benefits are clear and it’s time to do something about it.”
What’s next?
Access for All, our campaign to make CGM and Flash GM affordable and accessible for everyone living with T1D, is ramping up in British Columbia. Currently, neither CGM nor Flash GM are covered under B.C. Pharmacare. The B.C. government has been studying reimbursement for these devices and Minister of Health Adrian Dix has in the past suggested that coverage could be coming this year. We will keep you updated on the progress of this campaign.
If you haven’t already done so, please write to your MLA and tell them Canadians need access to Flash GMs and CGMs. Sophie, Alyssa, Lisa, Miguel and thousands more Canadians living with type 1 diabetes need your help to live easier, healthier, safer lives.
Take a few minutes and send them a message now then share this action with family and friends.
Here is an overview of our most recent efforts to demand affordable and accessible diabetes technologies for all Canadians living with type 1 diabetes (T1D).
You may remember from our last update that Yukon received #AccessForAll, thanks to the advocacy efforts of adults, parents and others touched by T1D. The Yukon government has moved to fully reimburse continuous glucose monitoring (CGM) and flash glucose monitoring (Flash GM) for people of all ages.
We were also pleased that all the Saskatchewan parties agreed on more coverage. This was great news for those with T1D living in the Yukon and Saskatchewan.
Manitoba
Our advocacy efforts in Manitoba continue to centre around extending age coverage for insulin pumps to 18+ learn more about this issue here.
JDRF is calling for a Made-in-Manitoba plan to support Manitobans in our upcoming budget submission.
In it, we ask that the government remove the current age restrictions for insulin pumps and extend coverage to all ages. We also ask that it invests in public coverage for continuous glucose monitors (CGM) and flash glucose monitors (Flash GM) for all ages. This plan would significantly improve the quality of life and health outcomes for Manitobans with T1D, but also allow for a more equitable and innovative health care system on par with other provinces and territories.
We hope to build on the success from parent and student led advocacy efforts in both the Yukon and Saskatchewan, so that Manitoba doesn’t get left behind.
British Columbia
We hosted four online community events from Jan 26th to Feb 4th that invited members of the BC T1D community and JDRF donors to show their support for #AccessForAll. These events were held to send a clear message to the B. government to cover CGM and Flash GM under B.C. Pharmacare.
The BC government is actively considering coverage for these technologies, and these events were held to ensure that the issue remains front and centre to ensure coverage that those living with type 1 diabetes (T1D) need.
The events were held in Fraser Valley, Northern & Island, the Interior – Tues. Feb 2 and Vancouver Coastal. Healthcare professionals and members of the T1D community shared their stories about the coverage issues and why access to T1D technology is so important. Elected officials were in attendance to connect with and learn from their constituents. We hope that by sending a strong message to BC representatives, we will see a commitment to funding these devices in the next provincial budget.
Pre-Budget recommendations submitted to the Government of Ontario
We are still advocating to the Ontario government to expand device access beyond Flash GM (currently covered for those under age 25, on disability or receiving social assistance who have no private insurance coverage and those over age 65), and also include funding for CGM (Continuous Glucose Monitoring) devices.
Included as well in our pre-budget submission was the recognition of how virtual care has expanded during COVID-19 and is likely to continue once the pandemic ends. Virtual care tied to access to Flash GM and CGM devices reduces both impact on the healthcare system and hallway medicine. This has health and economic benefits for the province.
Update from Brooke Roche, MBA, BEDS – Prime Minister’s Youth Council Member
JDRF volunteer advocate Brooks Roche has been extremely busy, reaching out to both members of the PEI and NFLD governments and federal MPs advocating for full coverage of Flash GM, CGM and insulin pumps in Atlantic Canada.
In September, the Prime Minister’s Youth Council met to discuss a wide range of topics with the PM – including the implementation of a national diabetes strategy. Brooks presented a fiscal, social, and celebratory case for comprehensive action, and in response the Prime Minister has committed to advocate in favour of implementing Diabetes 360 and to discuss the matter with Ministers Hajdu and Freeland in their coming meetings. He will also be involved in upcoming discussions with the PM and Minister Qualtrough on the Canada Disability Benefit referenced in the Speech from the Throne.
Brooks is doing amazing advocacy work and we’re very grateful to him.
Read his opinion piece published on CBC News to recognize the milestone anniversary of a 100 years since the discovery of insulin and the call to action for a national diabetes strategy here.
Our youth ambassadors took to the Hill virtually in 2020
Our Kids for a Cure Lobby Day-Home Edition was a great success. During the week of November 2nd, delegates joined JDRF for its annual Kids for a Cure Program. This year, due to COVID the event was held virtually.
Kids for a Cure is an initiative designed to raise awareness about the daily challenges faced by those living with type 1 (T1D) diabetes and the need for more Canadian research in this field. Throughout the week, our youth ambassadors share their personal stories of what it is like to live with T1D with Members of Parliament and Senators.
JDRF’s federal budget submission highlighted the 100th anniversary of the discovery of the insulin hormone– and emphasized how this remains the only treatment for people with diabetes and is not a cure. While technology has greatly improved the lives of people living with T1D, it is now time to more aggressively pursue research into cures.
The following three recommendations were submitted, with supporting evidence both to their demonstrated benefit to the health of Canadians living with T1D and economically.
Recommendation 1: The Government of Canada should honour next year’s centenary of the discovery of insulin through renewed research investment of $15M in the JDRF-CIHR Partnership to Diabetes to be matched by JDRF and its partners.
Recommendation 2: As recommended in the Disability Advisory Committee’s (DAC) First Annual Report, Canadians requiring life-sustaining therapy, including insulin therapy, should automatically qualify for the Disability Tax Credit (DTC). Recommendation 3: As recommended by the Standing Committee on Health in A Diabetes Strategy for Canada, the Government of Canada should invest in the implementation of a national diabetes strategy (Diabetes 360o) with specific outcomes for the different types of diabetes.
March 8 marks International Women’s Day (IWD) globally. This 2021 campaign theme is #ChooseToChallenge:
‘A challenged world is an alert world. Individually, we’re all responsible for our own thoughts and actions – all day, every day. We can all choose to challenge and call out gender bias and inequality. We can all choose to seek out and celebrate women’s achievements. Collectively, we can all help create an inclusive world. From challenge comes change, so let’s all choose to challenge.’https://www.internationalwomensday.com/
JDRF is pleased to rise to the challenge by celebrating the achievements of our women researchers. We are the leading charitable funder of research into cures and disease modifying therapies for type 1 diabetes (T1D). Among the many people working tirelessly to help create a world free from T1D are a number of exceptionally talented women.
Meet some of our women researchers:
Dr. Gillian Booth, a JDRF-funded scientist at the Centre for Urban Health Solutions within the Li Ka Shing Knowledge Institute of St. Michael’s Hospital in Toronto, and a team of researchers are aiming to improve glucose control and patient experiences by using modern technologies to optimize the way health care is delivered to people with T1D.
Dr. Yi-Chun Chen is a postdoctoral fellow at the University of British Columbia. She earned her Bachelor of Science in medical laboratory science at Taipei Medical University in Taiwan, her Master of Science in cell biology at the University of Connecticut and her PhD in cellular and integrative physiology from Indiana University School of Medicine in the United States.
Dr. Jayne Danska holds the Anne and Max Tanenbaum Chair in Molecular Medicine. She is a professor at the University of Toronto Faculty of Medicine and a senior scientist at The Hospital for Sick Children. Her research addresses the idea that the dramatic increase in autoimmune and inflammatory diseases over the past 50 years results, in part, from changes in our exposure to microbes. She is studying the role of the community of microbes that inhabit the human intestine (the microbiome) in altering risk for, and the progression of, T1D. The ultimate objective of her work is to identify new therapeutics to prevent the disease.
Dr. Heather Denroche (BC) – is a postdoctoral fellow at the University of British Columbia who is currently examining a hormone called islet amyloid polypeptide (IAPP), produced by pancreatic beta cells and released in response to elevated glucose, in order to better understand the role it plays in the loss of beta cells leading to T1D, as well as in transplanted stem cell-derived beta cells.
Dr. Suheda Erener is a research associate in the Faculty of Medicine at the University of British Columbia. Her study focuses on developing biomarkers that can predict the development of T1D. She is also investigating the role of non-coding RNAs in beta cell demise during T1D pathogenesis to unravel signaling pathways to stop beta cell destruction and/or enhance beta cell survival and function.
Dr. Kirsten Ward Hartstonge is a postdoctoral fellow at the University of British Columbia. Her research focuses on the role of regulatory T cells (Tregs) in human diseases such as T1D. She is investigating how Treg number and function may be used as a biomarker to predict if a patient is going to respond to a treatment or not.
Dr. Ya-Ching (Amanda) Huang, PhD, MSN, RN, a researcher focused on diabetes self-management and public health issues affecting underserved populations. She is studying the association between physical activities, sleep, and diabetes management; their psycho-social mechanisms; and programs that are culturally tailored to help enhance patients’ quality of life as well as caregiver effectiveness.
Dr. Megan Levings, BC Children’s Hospital Research Institute in collaboration with Dr. Jan Dutz (BC) are investigating whether the administration of an antibody called ustekinumab (include blog link here when ready) among adults and children newly diagnosed with T1D can protect insulin-producing beta cells.
Dr. Despoina Manousaki is a postdoctoral fellow at McGill University and a researcher at the Jewish General Hospital (Lady Davis Institute) in Montreal. Her recently published study has shown that low levels of vitamin D are not associated with increased likelihood of T1D.
Dr. Kathy McCoy is a professor in the Department of Physiology and Pharmacology, a member of the Snyder Institute for Chronic Diseases, and director of the International Microbiome Center at the University of Calgary. She is interested in the dynamic interplay between the gut microbiota and the innate and adaptive immune systems at mucosal and systemic sites. Her research aims to understand how exposure to intestinal microbes, particularly during early life, educates and regulates the immune system and how this can affect susceptibility to diseases, including T1D.
Dr. Adriana Migliorini, Postdoctoral Research Fellow at University Health Network, working as part of Dr. Nostro’s team researching islet transplantation and universal donor stem cell therapies.
Dr. Maria Cristina Nostro (ON) Senior Scientist at the McEwen Stem Cell Institute at University Health Network and Associate Professor at the University of Toronto and her team have received funding to use new transplantation strategies and apply universal donor stem cells to develop a superior islet-like product for people with T1D that will require little or no immunosuppression.
Dr. Tricia Tang is an associate professor in the Department of Medicine, Division of Endocrinology at the University of British Columbia’s Faculty of Medicine. She is also a registered clinical psychologist and behavioral scientist with over 20 years experience in developing and evaluating low-cost and sustainable models to improve long-term diabetes-related health outcomes in high-risk and medically underserved patient populations. Recently, she was awarded a JDRF Telehealth in Type 1 Diabetes Behavioral Health and Psychology grant to work on the implementation of a virtual care platform to improve mental health for people living with the disease in British Columbia’s rural and remote regions. Click here to watch her recent FB Live on Mental Health and T1D.
“Mental health is the cornerstone of self-management for any chronic illness, especially diabetes. Although an overwhelming number of adults with diabetes report experiencing diabetes distress, less than half seek counselling. Health care providers are not formally trained about the psychosocial and behavioural aspects of diabetes, and therefore lack the skills to raise these concerns with patients. More problematic, there is a shortage of clinical psychologists with an expertise in diabetes in Canada. It is critical that we develop and implement training initiatives to meet the mental health needs of the diabetes community.” – Dr. Tricia Tang
Helping us navigate our research funding priorities, which are shaping T1D research both in Canada and globally, while communicating the latest updates to our donors, supporters and T1D community is our Chief Scientific Officer, Dr. Sarah Linklater.
“I am so proud to be part of this change-making organization working at the interface of global, cutting-edge research and the T1D community. Every day is rewarding, as I truly feel that we are making real and rapid progress towards improving lives and, ultimately curing T1D.” -Dr. Sarah Linklater
We also acknowledge the many other women working at JDRF, volunteering and fundraising. Together we #ChooseToChallenge T1D and work towards turning type 1 into type none.
